SMA Foundation Home

Information on SMA, and the latest updates in research, treatment and funding

OVERVIEW

This site smafoundation.org currently has an average traffic classification of zero (the smaller the higher page views). We have scanned seven pages within the domain smafoundation.org and found two hundred and eighty-nine websites interfacing with smafoundation.org. There is two contacts and directions for smafoundation.org to help you connect with them. There is one mass network platforms possessed by smafoundation.org. This site smafoundation.org has been on the internet for one thousand one hundred and thirty-four weeks, twenty-six days, four hours, and seven seconds.
Pages Crawled
7
Links to this site
289
Contacts
2
Locations
2
Social Links
1
Online Since
Jan 2003

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SMAFOUNDATION.ORG HISTORY

This site smafoundation.org was started on on January 10, 2003. It is now one thousand one hundred and thirty-four weeks, twenty-six days, four hours, and seven seconds young.
REGISTERED
January
2003

LENGTH OF LIFE

21
YEARS
8
MONTHS
25
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LINKS TO WEB SITE

ADM Asociación Distrofia Muscular Argentina - ADM es entidad sin fines de lucro fundada en 1983 por pacientes con enfermedades neuromusculares y un equipo interdisciplinario de profesionales de la salud dedicados a su atención, investigación y

ADM - Asociación de Distrofia Muscular - Argentina. Hay más de 450 Enfermedades Neuromusculares diferentes. Afectan a 1 de cada 1000 personas. Sólo como ejemplo la Distrofia Muscular de Duchenne afecta a 1 de cada 3500 nacidos varones. La Atrofia Espinal, en su forma más severa, afecta a 1 de cada 6000 recién nacidos. En muchos casos, las Enfermedades Neuromusculares, no son diagnosticadas.

Fairbanks Alaska Office Of Childrens Services Stole Our Grand Children For Profit

money is only given if the case worker removes the child from the home. Our Grand Children are victims of;. In 1696, England first used the legal principle of. We the People of the United States, in Order to form a more perfect Union, establish Justice, insure d.

DEIRDRE MEDINAs DIARY A LITTLE MAGE in the FAMILY

Adventures of a 5 year old diva with Spinal Muscular Atrophy Type 1. Tuesday, March 17, 2015. How I miss you, Dee. You made life so much better. How sad is each day. You were my sunflower field. Sunday, February 22, 2015. TWO YEARS and FOUR MONTHS. and doing my best to keep my promises, little star. As the whole SMA community knows, this is no.

Bendanas.com

Absorb drool with style! Finally, a fashionable alternative for any one who has special needs resulting in excessive saliva issues. Each Bendana is handmade using terry cloth as an absorbent layer. Our design allows for adequate fastening around the neck. Anyone suffering from excessive saliva issues now has a fashion statement that allows for discreet absorption. And each Bendana only gets better with each wash cycle - like your favorite pair of jeans, broken in for softness.

Journey To Ethiopia

Tuesday, July 17, 2012. Now I can finally post photos! Our beautiful daughter Qian Yin. Here are some photos of our first moments together on July 6 at the healing home she had been living in. Here are some things we have learned about Qian Yin so far. Favorite English words are mommy and no. Loves to laugh and make us laugh. Likes to act and talk like a baby around us. Selective with whom she will interact.

Catlick Records

Its June 15th release date is perfectly timed; these songs speak of the summer. Funky than a ugly fight! More powerful than a heavy metal! .

WHAT DOES SMAFOUNDATION.ORG LOOK LIKE?

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CONTACTS

SMA Foundation

Cynthia Joyce

888 Seventh Avenue, Suite 400

New York, New York, 10019

US

Winning Strategies ITS

John Gayeski

550 Broad Street

Newark, New Jersey, 07102

US

SMAFOUNDATION.ORG HOST

We observed that a lone root page on smafoundation.org took one thousand three hundred and sixty milliseconds to stream. I could not discover a SSL certificate, so therefore we consider smafoundation.org not secure.
Load time
1.36 secs
SSL
NOT SECURE
Internet Protocol
192.185.77.17

NAME SERVERS

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SERVER OS

I discovered that this website is employing the nginx/1.8.0 os.

PAGE TITLE

SMA Foundation Home

DESCRIPTION

Information on SMA, and the latest updates in research, treatment and funding

CONTENT

This site smafoundation.org has the following in the site, "The mission of the Spinal Muscular Atrophy Foundation is to accelerate the development of a treatment for SMA." We noticed that the webpage also stated " Spinal Muscular Atrophy is the number one genetic killer of infants and toddlers." It also stated " 1 in 50 people are carriers of the disease."

SEEK MORE DOMAINS

Weblog SMA Fransiskus Bandar Lampung

Sekali lagi kami sebagai pengelola blog ini mohon maaf karena sudah lama tidak update isi dari blog ini. Diposting oleh SMA FRANSISKUS Bandar Lampung. Selamat Datang di Web Blog SMA Fransiskus Bandar Lampung.

Stone Music and Arts Festival - Home

Ben Owen and The Banjo Straps. Buskers and Open mic showcase. Opening ceremony and community groups. Christ Church Middle School music and performing arts, Stagecoach. We are extremely disappointed to have to convey this to you b.

Smafta - sports, martial arts, freetime activities

Here you can find the most appropriate sport for yourself! Do you have a Fitness hall or just a sport store? You could use a good advertisement? Register for free and be part of our sports community! To find the most appropriate Sport for you in your areea. To give you informations about Sports , Trainers and Health Centers. Looking for your Sport? Give us information about your age, Address and we will find the most appropriate Sport, Trainer and Sport Hall.

Ez a blog is egy Smafu.

Ez a blog is egy Smafu. Mozgássérülteknek felfelé, aztán a tetőn még egy akadálypálya várja őket.